Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
Abstracts Conclusions The seed grant scheme offers a low cost, high impact approach to working with communities.
WA40
THE GOOD NEIGHBOUR PARTNERSHIP: WHY DO WE NEED IT? WHO IS GOING TO DO IT? HOW ON EARTH ARE WE GOING TO EVALUATE IT?
Kathleen McLoughlin, Jim Rhatigan, Sinead McGilloway, Joanne Callinan, Marie Wright, Allan Kellehear, Michael Lucey, Marian Conroy, Feargal Twomey, Suresh Kumar, Emillio Herrera-Mollina, Mairead Furlong, Max Watson, David Currow, Christopher Bailey. Maynooth University and Milford Care Centre, Ireland 10.1136/bmjspcare-2015-000906.40
This one-hour symposium considers Milford Care Centre’s Compassionate Communities Good Neighbour Partnership and it’s evaluation by an international team, led by Maynooth University and funded by the All Ireland Institute of Hospice and Palliative Care, The Irish Cancer Society, The Irish Hospice Foundation and Milford Care Centre. The symposium will be divided into three sections: 1. The Good Neighbour Partnership: Why do we need it? In this section we will describe the findings from a recent scoping study to determine the social and practical needs of community dwelling adults (and their families) living with advanced life limiting illness at home. We will consider the rationale for specialist palliative care services, working with community groups, to lead the development of a volunteer-based social model of care to address unmet need. 2. The Good Neighbour Partnership: How do we recruit and train volunteers? We will share our process and experience of recruiting and training 15 Compassionate Communities Volunteers to assess unmet social and practical need, and to mobile the person’s circle of community to meet those needs. An understanding of the motivating factors of volunteers will be shared. 3. The Good Neighbour Partnership: How on earth are we going to evaluate it? Here we describe the INSPIRE study – Investigating Social and Practical Supports at the End of life. An exploratory delayed intervention randomised controlled trial (framed by the MRC Framework for Complex Interventions) to assess the feasibility, acceptability and potential effectiveness of the Good Neighbour Partnership.
Specialist Palliative Care Social Work department have been using the films during their direct work with patients and their families. Aim This presentation aims to introduce participants to the Let’s Talk film series and describe the learning from social workers who have used the films at home, and in the inpatient unit, with patients, their partners and their children. Method Social workers were interviewed, sharing their experience and reflection on using the animated films as a practice tool. Results A number of case studies will be presented to describe the use and impact of the films in practice. Conclusion The films are a very useful addition to the social work toolbox. Guidelines for their use in practice will be presented.
WA42
Angela Edghill, Miriam Donohoe. Irish Hospice Foundation, Ireland 10.1136/bmjspcare-2015-000906.42
Background The 2015 palliative care budget is €72 million (Euros) but up to €1.3 billion spent on end of life care annually – much of this larger figure unplanned and uncoordinated. Geographic and other inequities evident in palliative care provision. Aim Build support for the development and implementation of a National Strategy on Palliative Care, End of Life and Bereavement. Method Multi-layered approach to raising awareness and building consensus: . . . . . . . .
OA41
HOW CAN WE SUPPORT PEOPLE LIVING WITH DEATH, DYING, LOSS AND CARE USING ANIMATION? SOCIAL WORKERS REFLECT ON THE COMPASSIONATE COMMUNITIES ‘LET’S TALK’ FILMS
Marie Richardson, Noel Kennedy, Ruth Hoey, Jim Rhatigan, Rebecca Lloyd, Kathleen McLoughlin. Milford Care Centre, Ireland
PROVING ITS WORTH – CHANGING PUBLIC POLICY FOR PALLIATIVE CARE, END OF LIFE CARE AND BEREAVEMENT THROUGH ADVOCACY AND COMMUNICATIONS
. .
. .
Targeting the correct audience who can make change happen Presenting robust evidence including costs justifying reform and investment Demonstrating that issues affect a significant number of people Sharing experience and knowledge Knowing their policy priorities Staying resilient – advancing and introducing new angles to argument Engaging directly as advocates within the political system at all political levels – developing relationships with politicians Identifying advocates in the public service to promote policy change Using a variety of new and existing projects and programmes Encouraging patients and families to be self-advocates – using a novel project for discussing and recording future care preferences Supporting healthcare professionals to become effective advocates for patients Creating alliances to lobby for policy development Using media opportunities to sell the message
10.1136/bmjspcare-2015-000906.41
.
Background Milford Care Centre’s Compassionate Communities Project has developed a series of animated films – The ‘Let’s Talk’ Series. These films are used by the project to encourage people to have think about having difficult conversations about illness and death. The films are available on the project website, via You Tube and are shown during Café Conversations as part of the Compassionate Communities Project. More recently, members of the
Results The recognition of the importance of a strategic approach to palliative and end of life care acknowledged in Parliamentary Committee Report affords an opportunity to develop further policy and practice. Conclusion This a long – term exercise, dependent on supporting the implementation plan, building momentum and promoting a public dialogue on sensitive issues around dying, death and bereavement.
SPCare 2015;5(Suppl 1):A1–A32
A13
Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
WA40 The good neighbour partnership: why do we need it? who is going to do it? how on earth are we going to evaluate it? Kathleen McLoughlin, Jim Rhatigan, Sinead McGilloway, Joanne Callinan, Marie Wright, Allan Kellehear, Michael Lucey, Marian Conroy, Feargal Twomey, Suresh Kumar, Emillio Herrera-Mollina, Mairead Furlong, Max Watson, David Currow and Christopher Bailey BMJ Support Palliat Care 2015 5: A13
doi: 10.1136/bmjspcare-2015-000906.40 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A13.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts Conclusions The seed grant scheme offers a low cost, high impact approach to working with communities.
WA40
THE GOOD NEIGHBOUR PARTNERSHIP: WHY DO WE NEED IT? WHO IS GOING TO DO IT? HOW ON EARTH ARE WE GOING TO EVALUATE IT?
Kathleen McLoughlin, Jim Rhatigan, Sinead McGilloway, Joanne Callinan, Marie Wright, Allan Kellehear, Michael Lucey, Marian Conroy, Feargal Twomey, Suresh Kumar, Emillio Herrera-Mollina, Mairead Furlong, Max Watson, David Currow, Christopher Bailey. Maynooth University and Milford Care Centre, Ireland 10.1136/bmjspcare-2015-000906.40
This one-hour symposium considers Milford Care Centre’s Compassionate Communities Good Neighbour Partnership and it’s evaluation by an international team, led by Maynooth University and funded by the All Ireland Institute of Hospice and Palliative Care, The Irish Cancer Society, The Irish Hospice Foundation and Milford Care Centre. The symposium will be divided into three sections: 1. The Good Neighbour Partnership: Why do we need it? In this section we will describe the findings from a recent scoping study to determine the social and practical needs of community dwelling adults (and their families) living with advanced life limiting illness at home. We will consider the rationale for specialist palliative care services, working with community groups, to lead the development of a volunteer-based social model of care to address unmet need. 2. The Good Neighbour Partnership: How do we recruit and train volunteers? We will share our process and experience of recruiting and training 15 Compassionate Communities Volunteers to assess unmet social and practical need, and to mobile the person’s circle of community to meet those needs. An understanding of the motivating factors of volunteers will be shared. 3. The Good Neighbour Partnership: How on earth are we going to evaluate it? Here we describe the INSPIRE study – Investigating Social and Practical Supports at the End of life. An exploratory delayed intervention randomised controlled trial (framed by the MRC Framework for Complex Interventions) to assess the feasibility, acceptability and potential effectiveness of the Good Neighbour Partnership.
Specialist Palliative Care Social Work department have been using the films during their direct work with patients and their families. Aim This presentation aims to introduce participants to the Let’s Talk film series and describe the learning from social workers who have used the films at home, and in the inpatient unit, with patients, their partners and their children. Method Social workers were interviewed, sharing their experience and reflection on using the animated films as a practice tool. Results A number of case studies will be presented to describe the use and impact of the films in practice. Conclusion The films are a very useful addition to the social work toolbox. Guidelines for their use in practice will be presented.
WA42
Angela Edghill, Miriam Donohoe. Irish Hospice Foundation, Ireland 10.1136/bmjspcare-2015-000906.42
Background The 2015 palliative care budget is €72 million (Euros) but up to €1.3 billion spent on end of life care annually – much of this larger figure unplanned and uncoordinated. Geographic and other inequities evident in palliative care provision. Aim Build support for the development and implementation of a National Strategy on Palliative Care, End of Life and Bereavement. Method Multi-layered approach to raising awareness and building consensus: . . . . . . . .
OA41
HOW CAN WE SUPPORT PEOPLE LIVING WITH DEATH, DYING, LOSS AND CARE USING ANIMATION? SOCIAL WORKERS REFLECT ON THE COMPASSIONATE COMMUNITIES ‘LET’S TALK’ FILMS
Marie Richardson, Noel Kennedy, Ruth Hoey, Jim Rhatigan, Rebecca Lloyd, Kathleen McLoughlin. Milford Care Centre, Ireland
PROVING ITS WORTH – CHANGING PUBLIC POLICY FOR PALLIATIVE CARE, END OF LIFE CARE AND BEREAVEMENT THROUGH ADVOCACY AND COMMUNICATIONS
. .
. .
Targeting the correct audience who can make change happen Presenting robust evidence including costs justifying reform and investment Demonstrating that issues affect a significant number of people Sharing experience and knowledge Knowing their policy priorities Staying resilient – advancing and introducing new angles to argument Engaging directly as advocates within the political system at all political levels – developing relationships with politicians Identifying advocates in the public service to promote policy change Using a variety of new and existing projects and programmes Encouraging patients and families to be self-advocates – using a novel project for discussing and recording future care preferences Supporting healthcare professionals to become effective advocates for patients Creating alliances to lobby for policy development Using media opportunities to sell the message
10.1136/bmjspcare-2015-000906.41
.
Background Milford Care Centre’s Compassionate Communities Project has developed a series of animated films – The ‘Let’s Talk’ Series. These films are used by the project to encourage people to have think about having difficult conversations about illness and death. The films are available on the project website, via You Tube and are shown during Café Conversations as part of the Compassionate Communities Project. More recently, members of the
Results The recognition of the importance of a strategic approach to palliative and end of life care acknowledged in Parliamentary Committee Report affords an opportunity to develop further policy and practice. Conclusion This a long – term exercise, dependent on supporting the implementation plan, building momentum and promoting a public dialogue on sensitive issues around dying, death and bereavement.
SPCare 2015;5(Suppl 1):A1–A32
A13
Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
WA40 The good neighbour partnership: why do we need it? who is going to do it? how on earth are we going to evaluate it? Kathleen McLoughlin, Jim Rhatigan, Sinead McGilloway, Joanne Callinan, Marie Wright, Allan Kellehear, Michael Lucey, Marian Conroy, Feargal Twomey, Suresh Kumar, Emillio Herrera-Mollina, Mairead Furlong, Max Watson, David Currow and Christopher Bailey BMJ Support Palliat Care 2015 5: A13
doi: 10.1136/bmjspcare-2015-000906.40 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A13.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
