International Journal of Nursing Practice 2015; 21: 532–541
Resilience in families of children with Down syndrome in Korea Eun Kyoung Choi RN CPNP PhD Pediatric Nurse Practitioner, Department of Nursing, Severance Children’s Hospital, Yonsei Uninversity Health System, Seoul, South Korea
Il Young Yoo RN PhD Professor, Department of Family Health Care, Yonsei University College of Nursing, Seoul, South Korea
Accepted for publication October 2013 Choi EK, Yoo IY. International Journal of Nursing Practice 2015; 21: 532–541 Resilience in families of children with Down syndrome in Korea This study aims to identify the factors related to resilience of the families of children with Down syndrome (DS). Data were collected from 126 parents of children with DS in Korea, using a self-administered questionnaire. The age of the child, developmental level of the child, parental depression, and stress and strain were negatively related with family adaptation, whereas health of parents, family cohesiveness, flexibility, communication skills, supportive family/relatives, and quality of community service were positively related. Parental depression, family cohesiveness and communication skills were the factors that were strongly related to family resilience and adaptation. It is suggested that nursing interventions to decrease parental depression and increase family cohesiveness and communication skills should be included to increase resilience of the families of children with DS. Key words: Down syndrome, family adaptation, family resilience, protective factors, risk factors.
INTRODUCTION Down syndrome (DS) accounts for one in 700 live births and is the most common chromosomal cause of intellectual disability in children.1 The actual causes of DS are unknown, but occurrence of the DS increases significantly with advancing maternal age, especially after 34 years old.2 With the recent social trend of increasingly delayed age at first birth, the current incidence of DS births will likely be sustained. Among persons with DS, life expectancy has increased dramatically due to advances in medical science and technology. The median age of death in DS is now approaching 60 years, which has increased
Correspondence: Il Young Yoo, Department of Family Health Care, Yonsei University College of Nursing, 50 Yonsei-ro, Seodaemun-gu, Seoul 120-752, South Korea. Email: [email protected]
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