Accepted Manuscript Patient Satisfaction and Perceived Quality of Care Among Older Adults According to Activity Limitation Stages Hillary R. Bogner, MD, MSCE, Heather F. de Vries McClintock, MSPH, MSW, PhD, Sean Hennessy, PharmD, PhD, Jibby E. Kurichi, MPH, Joel E. Streim, MD, Dawei Xie, PhD, Liliana E. Pezzin, PhD, JD, Pui L. Kwong, MPH, Margaret G. Stineman, MD PII:

S0003-9993(15)00485-2

DOI:

10.1016/j.apmr.2015.06.005

Reference:

YAPMR 56230

To appear in:

ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION

Received Date: 17 March 2015 Revised Date:

14 May 2015

Accepted Date: 2 June 2015

Please cite this article as: Bogner HR, de Vries McClintock HF, Hennessy S, Kurichi JE, Streim JE, Xie D, Pezzin LE, Kwong PL, Stineman MG, Patient Satisfaction and Perceived Quality of Care Among Older Adults According to Activity Limitation Stages, ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION (2015), doi: 10.1016/j.apmr.2015.06.005. This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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Running Head: Patient Satisfaction Among Older Adults Patient Satisfaction and Perceived Quality of Care Among Older Adults According to

Hillary R. Bogner, MD, MSCE1,2

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Activity Limitation Stages

Heather F. de Vries McClintock, MSPH, MSW, PhD1,2 Sean Hennessy, PharmD, PhD2,3

Joel E. Streim, MD4

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Dawei Xie, PhD2

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Jibby E. Kurichi, MPH2

Liliana E. Pezzin, PhD, JD5 Pui L. Kwong, MPH2

Margaret G. Stineman, MD6

Department of Family Medicine and Community Health, University of Pennsylvania,

Philadelphia, Pennsylvania 2

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Clinical Epidemiology and Biostatistics, Perelman School of Medicine, University of

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Pennsylvania, Philadelphia, Pennsylvania

Center for Pharmacoepidemiology Research and Training, University of Pennsylvania,

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Philadelphia, Pennsylvania

Geriatric Psychiatry Section of the Department of Psychiatry, Perelman School of Medicine,

University of Pennsylvania, Philadelphia, Pennsylvania and VISN 4 Mental Illness Research Education and Clinical Center (MIRECC), Philadelphia VA Medical Center, Philadelphia, Pennsylvania 5

Department of Medicine, Medical College of Wisconsin, Milwaukee, Wisconsin

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Department of Physical Medicine and Rehabilitation, Perelman School of Medicine, University

of Pennsylvania, Philadelphia, Pennsylvania

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Disclosure of Interest: The authors have no financial or any other kind of conflicts of interest to declare.

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Acknowledgments:

This work was supported through a Patient-Centered Outcomes Research Institute PCORI

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Project Program Award AD-12-11-4567 and by the National Institutes of Health (R01AG040105 and R01HD074756). Dr. Bogner was supported by an American Heart Association Award #13GRNT17000021, a National Institute of Mental Health R21 MH094940, and a National

Corresponding author:

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Institute of Mental Health R34 MH085880.

Hillary R. Bogner, MD MSCE

Department of Family Medicine and Community Health

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Center for Clinical Epidemiology and Biostatistics

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928 Blockley Hall University of Pennsylvania Perelman School of Medicine Philadelphia, PA 19104 Email: [email protected] Phone: 215-746-4181

Reprints are not available from the authors.

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Patient Satisfaction and Perceived Quality of Care Among Older Adults According to

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Activity Limitation Stages

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ABSTRACT

5 OBJECTIVE: To examine whether patient satisfaction and perceived quality of medical care was

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related to stages of activity limitations among older adults.

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DESIGN: Cross-sectional study.

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SETTING: Medicare Current Beneficiary Survey (MCBS) for calendar years 2001-2011.

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PARTICIPANTS: A population-based sample (n= 42,584) of persons 65 years of age and older

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living in the community.

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INTERVENTIONS: Not applicable.

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MAIN OUTCOME MEASURE(S): MCBS questions were categorized under 5 patient

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satisfaction and perceived quality dimensions: care coordination and quality, access barriers,

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technical skills of primary care physicians, interpersonal skills of primary care physicians, and

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quality of information provided by primary care physicians. Persons were classified into a stage

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of activity limitation (0-IV) derived from self-reported difficulty levels performing activities of

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daily living (ADLs) and instrumental activities of daily living (IADLs).

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RESULTS: Compared to older beneficiaries with no limitations at ADL Stage 0, the adjusted

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odds ratios (OR) (95% confidence intervals (CI)) for Stage I (mild) to Stage III (severe) for

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satisfaction with care coordination and quality ranged from OR = 0.85 (95% CI: 0.80-0.92) to

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OR = 0.79 (95% CI: 0.70-0.89). Compared to ADL Stage 0, satisfaction with access barriers

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ranged from OR = 0.81 (95% CI: 0.76-0.87) at Stage I (mild) to a minimum of OR = 0.67 (95%

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CI: 0.59-0.76) at Stage III (severe). Similarly, compared to older beneficiaries at ADL Stage 0,

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perceived quality of the technical skills of their primary care physician ranged from OR = 0.87

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(95% CI: 0.82-0.94) at Stage I (mild) to a minimum of OR = 0.81 (95% CI: 0.72-0.91) at Stage

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III (severe).

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CONCLUSIONS: Medicare beneficiaries at higher stages of activity limitation although not

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necessarily the highest stage of activity limitation reported less satisfaction with medical care.

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KEY WORDS: Disabled persons; Medicare; Patient satisfaction; Elderly

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ABBREVIATIONS

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activities of daily living (ADLs)

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instrumental activities of daily living (IADLs)

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Medicare Current Beneficiary Survey (MCBS)

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Primary Care Physician (PCP)

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odds ratios (ORs)

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confidence intervals (CIs)

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INTRODUCTION

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Patient satisfaction is an important indicator of quality of care1 and has been demonstrated to provide useful insights for delivering efficient care that meets patient needs.2

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In some prior studies, satisfaction has been related to a single type of disabling impairment (i.e.,

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hearing impairment, mental disability, and other chronic conditions).3-6 Other work has examined

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the relationship between dissatisfaction and counts of limitations of activities of daily living

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(ADLs). These investigators have found that patients were more likely to report dissatisfaction

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with the overall quality of their health care as their number of activity restrictions increased after

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adjusting for sociodemographic, behavioral, and system characteristics.7

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However, counts of ADL or instrumental activity of daily living (IADL) limitations do not specify which activities are limited.8-10 In contrast, we sought to examine ADL and IADL

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limitations separately by defined stages that specify the activities older persons must be able to

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do without difficulty.11,12 Stages represent both the severity and types of limitations experienced

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and specify clinically meaningful patterns of increasing difficulty with self-care skills. By

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distinguishing activities older people are still able to do without difficulty from those that they

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find difficult, stages enhance opportunities for discourse about specific strategies for reducing

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disparities. No research to date has examined perceptions of care according to ADL and IADL

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activity limitation stages.

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Older adults with disabilities have difficulty obtaining healthcare services despite the

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availability of efficacious treatment. As individuals advance in age, their functional capabilities

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decline increasing the complexity of their medical care and influencing satisfaction.13 Our goal

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was to examine patient satisfaction and perceived quality of medical care among community-

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dwelling persons 65 years of age and older with differing ADL and IADL activity limitation

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stages using data from the Medicare Current Beneficiary Survey (MCBS), a systematic,

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representative sample. The objectives of the present study were 1) to describe how older

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Medicare beneficiaries assess satisfaction with care, access, and physician quality categorized

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under 5 patient satisfaction and perceived quality dimensions: care coordination and quality,

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access barriers, technical skills of primary care physicians, interpersonal skills of primary care

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physicians, and quality of information provided by primary care physicians; and 2) to assess

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whether satisfaction with care, access, and perceived physician quality were related to stages of

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activity limitation. We hypothesized that persons 65 years of age and older at higher stages of

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activity limitation would report less satisfaction with care coordination and quality, greater

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access barriers, and lower perceived technical skills, interpersonal skills and quality of

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information provided by primary care physicians compared to persons with no activity

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limitations.

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METHODS

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Study Sample from the Medicare Current Beneficiary Survey (MCBS) Our study is cross-sectional using MCBS questions. The study sample is derived from the

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MCBS, using data from calendar years 2001-2011 (n=42584). The MCBS is conducted by the

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Centers for Medicare and Medicaid Services through in-person beneficiary or proxy

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interviews.14-16 The majority of the sample responded for themselves, but 11.6% used proxies.

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Reasons for proxy use included hospitalization, institutionalization (temporarily), language

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problems, lack of mental or physical capability, absence of medical records, preference for the

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proxy to answer, or unavailability. Respondents are sampled from the Medicare enrollment file

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and the oldest old (80 and over) are oversampled to permit more detailed analyses of this sub-

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population.17 The sample was weighted to be representative of the fee-for-service and Health

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Maintenance Organization Medicare beneficiaries 65 years of age and older who were living in

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the community. The MCBS applies a rotating panel survey design whereby a panel is followed

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for 12 interviews. We used the Access to Care files at the time of their first interview. This study

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was approved by the Institutional Review Board at the University of Pennsylvania.

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Patient Satisfaction and Perceived Quality

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In the MCBS, a series of questions was used to measure satisfaction with care, access,

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and perceived physician quality. These questions were categorized under the 5 patient

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satisfaction and perceived quality dimensions listed below. Each dimension is comprised of

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patient or proxy answers to several questions rated either as: “very satisfied, satisfied,

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dissatisfied, or very dissatisfied” or as: “strongly agree, agree, disagree, or strongly disagree”

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during the patient’s baseline interview. Persons reporting “no experience” with an item were counted as a missing value for only that particular item. The patient satisfaction and perceived

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quality dimensions and component questions address: 1: Care Coordination and Quality: 5

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questions on overall quality of care, information given, follow-up care, concern for overall

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health, and needs met at same location. 2: Access Barriers: 3 questions on availability of

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night/weekend care, ease/convenience, and out-of-pocket costs. 3: Technical Skills of Primary

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Care Physician (PCP): 3 questions about checking “everything”, understanding medical

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history, and understanding what is wrong. 4: Interpersonal Skills of PCP: 4 questions about

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whether or not the PCP is in a hurry, does not explain, does not discuss, and acts like doing a

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favor. 5: Quality of Information provided by PCP: 4 questions about whether the PCP “tells

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all I want to know,” “answers all my questions,” “has my confidence,” and dependence on

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doctor(s) to “feel better both physically and emotionally.” Categorizing these questions under the

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5 patient satisfaction and perceived quality dimensions is supported by factor analysis.18 Patient

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satisfaction and perceived quality dimensions 1 and 2 were available for all beneficiaries, but

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PCP patient satisfaction and perceived quality dimensions were available only for 95.1% of

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beneficiaries who have regular PCPs. The responses to the three to five questions under each

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patient satisfaction and perceived quality dimension, values ranging from 1 to 4, were used to

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calculate an average summated score. The average summated score corresponding to the upper

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quartile was considered highly satisfied for patient satisfaction dimensions and highly favorable

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for perceived quality dimensions. For each patient satisfaction and perceived quality dimension,

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the highest quartile was compared to the 3 lower quartiles similar to prior work.19 Figure 1

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contains the questions about patient satisfaction with care, access, and perceived physician

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quality categorized by the 5 patient satisfaction and perceived quality dimensions.

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Stages of Activity Limitation Stages of activity limitation have been described in detail elsewhere.20 Briefly, stages of

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activity limitation were built to reflect the International Classification of Functioning, Disability

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and Health. These patient-centered outcomes were derived from patient- or proxy-reported

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answers to simple questions about difficulties performing basic activities. The ADL and IADL

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stages are ordered based on the probability that people with various levels of difficulty (i.e.,

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none, mild, moderate, severe, or complete) describe difficulty performing each activity.21 The

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ADLs were eating, toileting, dressing, bathing/showering, getting in or out of bed/chairs, and

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walking. The IADLs were using the telephone, managing money, preparing meals, doing light

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housework, shopping for personal items, and doing heavy housework. For each of the ADLs and

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IADLs, respondents are asked, “Because of a health condition, do you (or does the person you

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are answering for) have difficulty with…?”22,23

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Covariates

Sociodemographic characteristics included age (65-74, 75-84, and 85 and over24); gender;

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race/ethnicity (non-Hispanic African American or Black, Hispanic, non-Hispanic White, and

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other25); education (high school diploma or greater/less than high school diploma26); income

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(≤$25,000/>$25,00027); supplemental insurance type (Medicare only, Medicare and Medicaid-

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dual enrollee, private-supplemental, other (i.e., Champus, VA)); living arrangement (lives alone,

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with spouse, with children, with other relatives or non-relatives, or in a retirement community);

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and the presence or absence of accessibility features in the home. Health status was captured by

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self-reported chronic conditions and impairments.

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Analysis Our analysis proceeded in two phases. First, a descriptive analysis was applied to estimate the distribution of baseline ADL and IADL stages, sociodemographic characteristics,

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and self-reported health conditions and impairments. Second, logistic regression models were

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run to determine whether the five patient satisfaction and perceived quality dimensions differed

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by ADL and IADL stages. ADL stages (Stage 0 as reference) and IADL stages (Stage 0 as

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reference) were analyzed separately. For each patient satisfaction and perceived quality

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dimension, we performed a logistic regression using the specific dimension as the dependent

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variable and sociodemographic characteristics (age, gender, race/ethnicity, education, and annual

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income), supplemental insurance, living arrangement, home accessibility features, proxy status,

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self-reported health conditions and impairments as explanatory variables. Our measures of

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association were adjusted odd ratios with 95% confidence intervals. We tested collinearity

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between the variables in the final models applying criteria established by Belsley et al.28 and

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illustrated by Mason.29 According to this criteria, harmful collinearity is found when a condition

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index is larger than 20. P-values were two-sided, with statistical significance at p

Patient Satisfaction and Perceived Quality of Care Among Older Adults According to Activity Limitation Stages.

To examine whether patient satisfaction and perceived quality of medical care are related to stages of activity limitations among older adults...
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