Downloaded from http://spcare.bmj.com/ on November 20, 2015 - Published by group.bmj.com
Abstracts REFERENCE 1
Dying Matters Survey http://www.comres.co.uk/polls/Dying_Matters_Public_April 12. pdf
Aim . .
PA18
HEART OF GOLD. INTEGRATING CROSS BOUNDARY CARE ACROSS DIFFERENT SECTORS WITH PATIENTS AT THE HEART OF CARE – A POPULATION-BASED PUBLIC HEALTH PERSPECTIVE
Keri Thomas, Maggie Stobbart Rowlands, Julie Armstrong Wilson. The Gold Standards Framework, UK 10.1136/bmjspcare-2015-000906.78
Background In response to the growing challenge of over-hospitalisation and fragmentation of care for people nearing the endof-life, a key factor is to develop an integrated cross-boundary care approach to meet the population’s needs. Gold Standards Framework (GSF) quality improvement programmes are widely used in the UK in primary care, care homes, hospitals, domiciliary care and hospices. By working together to a common plan, GSF can help be a vehicle for improvement with patients at the heart of care. Aim To explore using GSF programmes in different settings to develop an integrated whole-system approach, with patients at the heart of care – the ‘heart of gold’ projects. Method A description of GSF used in different settings as a common language to develop better integrated cross-boundary care, with peoples’ wishes and preferences at the heart of care. GSF improves the early identification, Advance Care Planning discussions and coordination of care reducing unnecessary hospital admissions. Results Findings from different sectors are presented from each setting, looking at whole-systems, and practical and qualitative measures of progress. Conclusion Real improvements are being seen across whole areas using GSF as a vehicle for better co-ordinated care. ‘Gold patients’ and their families feel many benefits and there is greater openness and ‘cultural change’ in end-of-life-care, especially for the frail elderly. GSF can be part of the solution in developing such integrated care by developing a common ‘vocabulary’ of care for all people in any setting with any condition in the final years of life.
PA19
‘CLOSING THE GAP’: A COMMUNITY ENGAGEMENT PROJECT
George Obita, Anna Wolkowski, Linda Johnson, Sarah Cash, Matthew Blagojevic, All other members of the project group are acknowledged: Briony Ming, Dave Carrick, Diane Dinning, Elaine Lord, Karinda Jones, Tania Wilson, Tania Wood. Dove House Hospice, UK 10.1136/bmjspcare-2015-000906.79
Background Dove House Hospice serves a population of about 600,000 covering Hull and East Riding. About 42% of people in Hull and East Riding die in their usual residence. Dove House Hospice’s vision is to provide excellent specialist palliative care and support to patients, their families and carers in the locality. Despite excellent services provided, there was evidence of lack of awareness. A project, using a community engagement approaches, was therefore developed to close this gap.
SPCare 2015;5(Suppl 1):A1–A32
.
Raise awareness about death, dying, loss and care; and services provided by Dove House Hospice Improve partnerships between Dove House Hospice and the community. Increase social supports to those who experiences death, dying, loss and caregiving.
Methods Approach: Two postcode areas, namely Cottingham and Bransholme, were initially selected for two-week community engagement activities. The key approaches used were: direct engagement with the public, participation in community activities, engagement with local primary health care services and distribution of information leaflets. Evaluation approach: Use of pre and post activities questionnaire and feedback meetings with key community members. Results Leaflets were distributed to a total of about 18,000 addresses. Immediate result include: Increased donation, increased application for volunteering and increased referrals. Community involvement in end of life care waits to be evaluated. Conclusion This is an on-going project. Early indications are that there has been improved awareness of the hospice services and interest in the hospice’s activities. The project has also contributed to the hospice being included in the pathfinder charter community.
PA20
VIEWS ON TALKING ABOUT DEATH, DYING AND LOSS
Katharine Abba, Siobhan Horton, Mari Lloyd-Williams. Academic Palliative and Supportive Care Studies Group, UK 10.1136/bmjspcare-2015-000906.80
Background Societal barriers to open discussion of personal feelings and preferences relating to death may hinder planning for end of life and supporting people who are dying or bereaved. Aim To explore views about talking about death, dying and loss. Method Semi-structured interviews were conducted with 31 people; age range 30 to 83 years. Results Making wills and communicating end of life wishes were considered very important; mostly for the sake of the family left behind. Participants also valued confidence to discuss other people’s end of life wishes and support them appropriately if they were dying or bereaved. Many participants were very comfortable talking about their own death. Identified barrier to talking about end of life wishes included not wanting to upset others; others not listening; not being about to find an appropriate moment; not knowing enough about the options available; and fear of death, especially of the unknown. Financial costs were seen as a barrier to making a will. Participants talked of the importance of raising awareness of what death and dying involves; what end of life options available; and the importance of communication. Information on the process of normal grieving and how to support somebody who has been bereaved were also suggested. Conclusion Being able to talk about end of life wishes and know how to support people who are dying or bereaved are important to many people, and they would welcome interventions to facilitate this at a societal level.
A25
Downloaded from http://spcare.bmj.com/ on November 20, 2015 - Published by group.bmj.com
PA19 'closing the gap': a community engagement project George Obita, Anna Wolkowski, Linda Johnson, Sarah Cash, Matthew Blagojevic, Briony Ming, Dave Carrick, Diane Dinning, Elaine Lord, Karinda Jones, Tania Wilson and Tania Wood BMJ Support Palliat Care 2015 5: A25
doi: 10.1136/bmjspcare-2015-000906.79 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A25.2
These include:
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Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts REFERENCE 1
Dying Matters Survey http://www.comres.co.uk/polls/Dying_Matters_Public_April 12. pdf
Aim . .
PA18
HEART OF GOLD. INTEGRATING CROSS BOUNDARY CARE ACROSS DIFFERENT SECTORS WITH PATIENTS AT THE HEART OF CARE – A POPULATION-BASED PUBLIC HEALTH PERSPECTIVE
Keri Thomas, Maggie Stobbart Rowlands, Julie Armstrong Wilson. The Gold Standards Framework, UK 10.1136/bmjspcare-2015-000906.78
Background In response to the growing challenge of over-hospitalisation and fragmentation of care for people nearing the endof-life, a key factor is to develop an integrated cross-boundary care approach to meet the population’s needs. Gold Standards Framework (GSF) quality improvement programmes are widely used in the UK in primary care, care homes, hospitals, domiciliary care and hospices. By working together to a common plan, GSF can help be a vehicle for improvement with patients at the heart of care. Aim To explore using GSF programmes in different settings to develop an integrated whole-system approach, with patients at the heart of care – the ‘heart of gold’ projects. Method A description of GSF used in different settings as a common language to develop better integrated cross-boundary care, with peoples’ wishes and preferences at the heart of care. GSF improves the early identification, Advance Care Planning discussions and coordination of care reducing unnecessary hospital admissions. Results Findings from different sectors are presented from each setting, looking at whole-systems, and practical and qualitative measures of progress. Conclusion Real improvements are being seen across whole areas using GSF as a vehicle for better co-ordinated care. ‘Gold patients’ and their families feel many benefits and there is greater openness and ‘cultural change’ in end-of-life-care, especially for the frail elderly. GSF can be part of the solution in developing such integrated care by developing a common ‘vocabulary’ of care for all people in any setting with any condition in the final years of life.
PA19
‘CLOSING THE GAP’: A COMMUNITY ENGAGEMENT PROJECT
George Obita, Anna Wolkowski, Linda Johnson, Sarah Cash, Matthew Blagojevic, All other members of the project group are acknowledged: Briony Ming, Dave Carrick, Diane Dinning, Elaine Lord, Karinda Jones, Tania Wilson, Tania Wood. Dove House Hospice, UK 10.1136/bmjspcare-2015-000906.79
Background Dove House Hospice serves a population of about 600,000 covering Hull and East Riding. About 42% of people in Hull and East Riding die in their usual residence. Dove House Hospice’s vision is to provide excellent specialist palliative care and support to patients, their families and carers in the locality. Despite excellent services provided, there was evidence of lack of awareness. A project, using a community engagement approaches, was therefore developed to close this gap.
SPCare 2015;5(Suppl 1):A1–A32
.
Raise awareness about death, dying, loss and care; and services provided by Dove House Hospice Improve partnerships between Dove House Hospice and the community. Increase social supports to those who experiences death, dying, loss and caregiving.
Methods Approach: Two postcode areas, namely Cottingham and Bransholme, were initially selected for two-week community engagement activities. The key approaches used were: direct engagement with the public, participation in community activities, engagement with local primary health care services and distribution of information leaflets. Evaluation approach: Use of pre and post activities questionnaire and feedback meetings with key community members. Results Leaflets were distributed to a total of about 18,000 addresses. Immediate result include: Increased donation, increased application for volunteering and increased referrals. Community involvement in end of life care waits to be evaluated. Conclusion This is an on-going project. Early indications are that there has been improved awareness of the hospice services and interest in the hospice’s activities. The project has also contributed to the hospice being included in the pathfinder charter community.
PA20
VIEWS ON TALKING ABOUT DEATH, DYING AND LOSS
Katharine Abba, Siobhan Horton, Mari Lloyd-Williams. Academic Palliative and Supportive Care Studies Group, UK 10.1136/bmjspcare-2015-000906.80
Background Societal barriers to open discussion of personal feelings and preferences relating to death may hinder planning for end of life and supporting people who are dying or bereaved. Aim To explore views about talking about death, dying and loss. Method Semi-structured interviews were conducted with 31 people; age range 30 to 83 years. Results Making wills and communicating end of life wishes were considered very important; mostly for the sake of the family left behind. Participants also valued confidence to discuss other people’s end of life wishes and support them appropriately if they were dying or bereaved. Many participants were very comfortable talking about their own death. Identified barrier to talking about end of life wishes included not wanting to upset others; others not listening; not being about to find an appropriate moment; not knowing enough about the options available; and fear of death, especially of the unknown. Financial costs were seen as a barrier to making a will. Participants talked of the importance of raising awareness of what death and dying involves; what end of life options available; and the importance of communication. Information on the process of normal grieving and how to support somebody who has been bereaved were also suggested. Conclusion Being able to talk about end of life wishes and know how to support people who are dying or bereaved are important to many people, and they would welcome interventions to facilitate this at a societal level.
A25
Downloaded from http://spcare.bmj.com/ on November 20, 2015 - Published by group.bmj.com
PA19 'closing the gap': a community engagement project George Obita, Anna Wolkowski, Linda Johnson, Sarah Cash, Matthew Blagojevic, Briony Ming, Dave Carrick, Diane Dinning, Elaine Lord, Karinda Jones, Tania Wilson and Tania Wood BMJ Support Palliat Care 2015 5: A25
doi: 10.1136/bmjspcare-2015-000906.79 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A25.2
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
