Downloaded from http://spcare.bmj.com/ on September 26, 2015 - Published by group.bmj.com
Abstracts Conclusion In contrast to a narrowing tendency in modern ethics/ethics consultation (focus on moral dilemmas and treatment decisions) the objective of ethical deliberation is not just a singular decision but the sustainable cultivation of collective practical wisdom in a web of meaningful relationships.
OA53
“DEMENTIA FRIENDLY PHARMACIES” A COMMUNITY BASED HEALTH PROMOTION PROJECT
Katharina Heimerl, Petra Plunger, Verena Tatzer, Elisabeth Reitinger. Faculty of Interdisciplinary Studies IFF Wien/Vienna, Institute of Palliative Care and Organisational Ethics, Alpen-Adria University Klagenfurt, Wien, Graz, Austria 10.1136/bmjspcare-2015-000906.53
Background Inspired by the Ottawa Charter for Health Promotion, which is a major point of reference also for the “Compassionate Communities”, we would like to propose that communities consolidate various settings like schools, workplaces, and health care organisations like community pharmacies, all of which might be included in a compassionate communities approach. Aim We aim at enabling community pharmacies to offer informal consulting and support for people with dementia and their informal caregivers. Furthermore we want to support pharmacies to reach out in the community through various activities. By this means the project seeks to contribute to de-stigmatising dementia. Method The project is based on the approach “Participatory Health Research” (Hockley, Froggatt, Heimerl 2013; Wright et al. 2010). The core elements of the approach are participation, action and reflection. Approximately 40 staff (almost exclusively women) in 18 community pharmacies actively participates in the project, i.e. needs assessment, interactive workshops, practice projects and evaluation. People with dementia and their informal care givers are included in the needs assessment and in different steps of the programme. Results Community pharmacy staff raised several issues, closely related to communication, counselling and providing advice in a community pharmacy setting: They believe further development of professional practice to be important, since dementia care will become a more prominent issue for the community pharmacy. Moreover, a high frequency of contact with people living with dementia and their caregivers was reported by the majority of staff. Professional competencies related to dementia care are a key issue, and community pharmacy personnel viewed their practice with a critical eye: Communicating with disoriented persons poses some challenges, as does communicating with caregivers. Conclusion In the still ongoing project the raised issues are being dealt with in practice projects that are performed by the pharmacies with the support of the project staff. Several projects reach out to the community through self-help groups, cinema performances, public presentations and discussions. Informal care givers have engaged in direct contact with the included pharmacies and become part of selected practice projects. People with dementia have been included in the needs assessment and the design of the project logo.
OA54
PAYING IT FORWARD – HOW PARTICIPATION, CARE AND CONNEXION WITH OUR LOVED ONES AT DEATH LEADS TO FUTURE COMMUNITY PARTICIPATION
Claire Turnham. Only With Love & Home Funeral Guide, UK 10.1136/bmjspcare-2015-000906.54
SPCare 2015;5(Suppl 1):A1–A32
In this talk I draw from my own personal and professional experiences of families gently caring for loved ones after death and wish to show that when we are encouraged to remain actively involved in death care and connected to our dead that we are empowered to help ourselves and others through the process. I plan to use specific, practical examples from a range of home and family-led funerals which show that when we embrace death by lovingly participating in this way we are enabled to confidently support, guide and give back to our communities. This will include the recent experience of woman who felt so enabled after washing, dressing and caring for the body of her husband that she hired a car and drove his coffin to the natural burial ground the next day. At the graveside she led the eulogy and powerfully sang to his coffin as it was lowered into the earth by family bearers. Three weeks later the same woman felt so inspired that she willingly hired another car and drove the coffin of a stranger to the church and crematorium as a simple and kind act of paying it forward in the spirit of community. In turn the second widow offered a donation to a charity of the first widow’s choice. In doing so both families developed and shared a close bond which they hope will nourish and sustain them always. In reclaiming this lost art of caring for our own and actively participating in this way I suggest we can help each other to find purpose, meaning and transform our experience as a human community which connects us all in both life and death.
OA55
IMPACT OF COMMUNITY HEALTH WORKERS FOR CONTINUUM CARE OF PALLIATIVE CARE AT COMMUNITY LEVEL INTEGRATED IN RWANDA PUBLIC HEALTH SYSTEM
Christian Ntizimira, Osee Sebatunzi, Olive Mukeshimana, Scholastique Ngizwenayo. Kibagabaga Hospital, Rawanda
Viviane
Umutesi,
10.1136/bmjspcare-2015-000906.55
Background Multi-disciplinary palliative care for patients with any disease is rarely integrated into the public healthcare system at all levels in Africa. In Kigali, Rwanda, we have developed palliative care services in a district general hospital and linked these services to home care using community health workers. In addition, the Ministry of Health recently approved a palliative care training curriculum for community health workers employed by the government who will expand and make sustainable palliative home care. Aim The impact of Community health workers helped the district hospital to map patients with chronic diseases, palliative care and identify symptoms for better orientation. Method At Kibagabaga Hospital, the public hospital for Gasabo District that includes 60% of the population of Kigali, we initiated a training of 481 community health workers (CHW), 1 CHW/per village for continuing care and retro-information to the District Palliative Care team through Health centre. Results As of June 2014, community health workers had identified 432 patients and report has been sent to the district palliative care team for mapping. Anecdotal data indicates a high level of satisfaction by patients and family members with palliative care assisted at community level and a reduced stress of continuum care. Conclusion It is feasible to integrate palliative care for patients at community level into public healthcare systems in Africa using Community health workers.
A17
Downloaded from http://spcare.bmj.com/ on September 26, 2015 - Published by group.bmj.com
OA53 ''dementia friendly pharmacies'' a community based health promotion project Katharina Heimerl, Petra Plunger, Verena Tatzer and Elisabeth Reitinger BMJ Support Palliat Care 2015 5: A17
doi: 10.1136/bmjspcare-2015-000906.53 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A17.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts Conclusion In contrast to a narrowing tendency in modern ethics/ethics consultation (focus on moral dilemmas and treatment decisions) the objective of ethical deliberation is not just a singular decision but the sustainable cultivation of collective practical wisdom in a web of meaningful relationships.
OA53
“DEMENTIA FRIENDLY PHARMACIES” A COMMUNITY BASED HEALTH PROMOTION PROJECT
Katharina Heimerl, Petra Plunger, Verena Tatzer, Elisabeth Reitinger. Faculty of Interdisciplinary Studies IFF Wien/Vienna, Institute of Palliative Care and Organisational Ethics, Alpen-Adria University Klagenfurt, Wien, Graz, Austria 10.1136/bmjspcare-2015-000906.53
Background Inspired by the Ottawa Charter for Health Promotion, which is a major point of reference also for the “Compassionate Communities”, we would like to propose that communities consolidate various settings like schools, workplaces, and health care organisations like community pharmacies, all of which might be included in a compassionate communities approach. Aim We aim at enabling community pharmacies to offer informal consulting and support for people with dementia and their informal caregivers. Furthermore we want to support pharmacies to reach out in the community through various activities. By this means the project seeks to contribute to de-stigmatising dementia. Method The project is based on the approach “Participatory Health Research” (Hockley, Froggatt, Heimerl 2013; Wright et al. 2010). The core elements of the approach are participation, action and reflection. Approximately 40 staff (almost exclusively women) in 18 community pharmacies actively participates in the project, i.e. needs assessment, interactive workshops, practice projects and evaluation. People with dementia and their informal care givers are included in the needs assessment and in different steps of the programme. Results Community pharmacy staff raised several issues, closely related to communication, counselling and providing advice in a community pharmacy setting: They believe further development of professional practice to be important, since dementia care will become a more prominent issue for the community pharmacy. Moreover, a high frequency of contact with people living with dementia and their caregivers was reported by the majority of staff. Professional competencies related to dementia care are a key issue, and community pharmacy personnel viewed their practice with a critical eye: Communicating with disoriented persons poses some challenges, as does communicating with caregivers. Conclusion In the still ongoing project the raised issues are being dealt with in practice projects that are performed by the pharmacies with the support of the project staff. Several projects reach out to the community through self-help groups, cinema performances, public presentations and discussions. Informal care givers have engaged in direct contact with the included pharmacies and become part of selected practice projects. People with dementia have been included in the needs assessment and the design of the project logo.
OA54
PAYING IT FORWARD – HOW PARTICIPATION, CARE AND CONNEXION WITH OUR LOVED ONES AT DEATH LEADS TO FUTURE COMMUNITY PARTICIPATION
Claire Turnham. Only With Love & Home Funeral Guide, UK 10.1136/bmjspcare-2015-000906.54
SPCare 2015;5(Suppl 1):A1–A32
In this talk I draw from my own personal and professional experiences of families gently caring for loved ones after death and wish to show that when we are encouraged to remain actively involved in death care and connected to our dead that we are empowered to help ourselves and others through the process. I plan to use specific, practical examples from a range of home and family-led funerals which show that when we embrace death by lovingly participating in this way we are enabled to confidently support, guide and give back to our communities. This will include the recent experience of woman who felt so enabled after washing, dressing and caring for the body of her husband that she hired a car and drove his coffin to the natural burial ground the next day. At the graveside she led the eulogy and powerfully sang to his coffin as it was lowered into the earth by family bearers. Three weeks later the same woman felt so inspired that she willingly hired another car and drove the coffin of a stranger to the church and crematorium as a simple and kind act of paying it forward in the spirit of community. In turn the second widow offered a donation to a charity of the first widow’s choice. In doing so both families developed and shared a close bond which they hope will nourish and sustain them always. In reclaiming this lost art of caring for our own and actively participating in this way I suggest we can help each other to find purpose, meaning and transform our experience as a human community which connects us all in both life and death.
OA55
IMPACT OF COMMUNITY HEALTH WORKERS FOR CONTINUUM CARE OF PALLIATIVE CARE AT COMMUNITY LEVEL INTEGRATED IN RWANDA PUBLIC HEALTH SYSTEM
Christian Ntizimira, Osee Sebatunzi, Olive Mukeshimana, Scholastique Ngizwenayo. Kibagabaga Hospital, Rawanda
Viviane
Umutesi,
10.1136/bmjspcare-2015-000906.55
Background Multi-disciplinary palliative care for patients with any disease is rarely integrated into the public healthcare system at all levels in Africa. In Kigali, Rwanda, we have developed palliative care services in a district general hospital and linked these services to home care using community health workers. In addition, the Ministry of Health recently approved a palliative care training curriculum for community health workers employed by the government who will expand and make sustainable palliative home care. Aim The impact of Community health workers helped the district hospital to map patients with chronic diseases, palliative care and identify symptoms for better orientation. Method At Kibagabaga Hospital, the public hospital for Gasabo District that includes 60% of the population of Kigali, we initiated a training of 481 community health workers (CHW), 1 CHW/per village for continuing care and retro-information to the District Palliative Care team through Health centre. Results As of June 2014, community health workers had identified 432 patients and report has been sent to the district palliative care team for mapping. Anecdotal data indicates a high level of satisfaction by patients and family members with palliative care assisted at community level and a reduced stress of continuum care. Conclusion It is feasible to integrate palliative care for patients at community level into public healthcare systems in Africa using Community health workers.
A17
Downloaded from http://spcare.bmj.com/ on September 26, 2015 - Published by group.bmj.com
OA53 ''dementia friendly pharmacies'' a community based health promotion project Katharina Heimerl, Petra Plunger, Verena Tatzer and Elisabeth Reitinger BMJ Support Palliat Care 2015 5: A17
doi: 10.1136/bmjspcare-2015-000906.53 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A17.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
