Downloaded from http://spcare.bmj.com/ on November 29, 2015 - Published by group.bmj.com
Abstracts
Oral and Workshop Abstract Submissions OA1
THERE’S PLENTY OF TALK ABOUT ADVANCE CARE PLANNING BUT SHOULD WOMEN BE LISTENING?
Lisa Williams, Lynne Giddings, Gary Bellamy, Merryn Gott. School of Nursing, University of Auckland, New Zealand 10.1136/bmjspcare-2015-000906.1
Background It is well established that populations worldwide are ageing. It is also well known that women will continue to live longer than men. Indeed, the social gerontology literature describes ‘deep old age’ as being predominantly female. However, little research exists about the gendered implications of palliative care. Aim To provide a feminist critique of attitudes towards and perceptions about Advance Care Planning (ACP) amongst community dwelling adults. Methods Forty-seven women and men (55–93) resident in Auckland, New Zealand and members of community organisations participated in seven focus groups. Vignettes about individuals with chronic illnesses were used to encourage discussion about participants’ views on Advance Care Planning (ACP). A feminist gerontology framework informed the thematic analysis. Results Study participants stated there is an expectation women will provide end of life care for their partners, thus facilitating the partner‘s option to remain at home. Some women voiced concern about how a lack of financial resources, family and social networks affected their current wellbeing and shaped their fears for the future. Other attitudes expressed highlighted awareness of the physical, emotional and financial burden women experience as a result of providing end of life care. Conclusion This study, one of the first to adopt and explicitly feminist approach to ACP, suggests attitudes towards ACP are highly gendered, while women are often caregivers for others at the end of life, their own choices are more likely to be circumscribed by living alone at the end of life or being resident in aged residential care.
OA2
CHINESE MIGRANT PEASANT WORKERS AND THE CONTRADICTORY DEMANDS OF FILIAL PIETY IN NEO-LIBERAL CHINESE SOCIETY: A CASE STUDY OF FILIAL END-OF-LIFE CARE IN LANGZHONG CITY
Longtao He. University of Christchurch, New Zealand 10.1136/bmjspcare-2015-000906.2
Background Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multigenerational households caused by rural-urban migration, population ageing, the fall in fertility and ‘One-Child Policy’, and women’s increasing participation in the labour market, emphasises an individualised, wage earning centred society. On the other hand, the Chinese government has sought to enforce a form of institutionalised filial piety through policies that legally require younger generations fulfil the full responsibility of care as there is no institutionalised equivalent of the welfare state to provide e.g. home help or personal care to the elderly whose relatives live and work at some distance. This places many younger
SPCare 2015;5(Suppl 1):A1–A32
generations in the contradiction of having to comply with neoliberal labour market demands while also fulfilling state enforced filial piety. Aim This research is to look at how Chinese migrant worker experience perceived filial responsibilities in relation to End-ofLife care for parents diagnosed with cancer in the current Chinese context. Method My PhD, based on interviews with migrant peasant workers caught in this dilemma by the demands of having a terminally ill parent, examines how Chinese migrant peasant workers negotiate and conduct their filial practices. Results The preliminary analysis of the interviews suggests that ‘Filial Piety’ is getting reconstructed in multifaceted ways as they negotiate the care dilemmas they face. The way they engage with the concept of filial piety enables and constrains how they can think about and practically organise their parents’ care. Conclusion The result would shed a light on evaluation of and suggestions for governmental policy-makings, such as the newly implemented Parent-Visiting law in China, in terms of better reinforcing familial value and equipping end-of-life care, as well as taking into account of the specificity of peasant migrant workers’ socio-economic status quo.
WA3
ROOM FOR DEATH – INTERNATIONAL MUSEUM – VISITORS’ PREFERENCES REGARDING THE END OF THEIR LIFE
1
Olav Lindqvist, 2Carol Tishelman. 1Deptartment of Learning, Informatics, Management and Ethics/MMC, Karolinska Institutet, Sweden; 2Deptartment of Nursing, Umeå University, Umeå, Sweden
10.1136/bmjspcare-2015-000906.3
Background Just as pain medications aim to relieve physical suffering, supportive surrounding for death and dying may facilitate well-being and comfort. However, little has been written of the experience of or preferences for settings for death and dying. Aim We investigate preferences for and reflections about settings for end-of-life (EoL) in an international sample of museum visitors. Methods Data derive from a project teaming artists and craftspeople together to create prototypes of space for difficult conversations in EoL settings. These prototypes were presented in a museum exhibition, “Room for Death”, in Stockholm in 2012. As project consultants, we contributed a question to the public viewing the exhibition: “How would you like it to be around you when you are dying?” and analysed responses with a phenomenographic approach. Results Five-hundred twelve responses were obtained from visitors from 46 countries. Responses were categorised in the following inductively– derived categories of types of deaths: The “Familiar”, “Larger-than life”, “Lone”, “Mediated” “Calm and peaceful”, “Sensuous”, “‘Green’”, and “Distanced” death. Responses could relate to one category or be composites uniting different categories in individual combinations. Conclusion These data provide insight into different facets of contemporary reflections about death and dying. Despite the selective sample, the findings give reason to consider how underlying assumptions and care provision in established forms for EoL care may differ from people’s preferences. This project can be seen as an example of innovative endeavours to promote public awareness of issues related to death and dying, within the framework of health-promoting palliative care.
A1
Downloaded from http://spcare.bmj.com/ on November 29, 2015 - Published by group.bmj.com
OA1 There's plenty of talk about advance care planning but should women be listening? Lisa Williams, Lynne Giddings, Gary Bellamy and Merryn Gott BMJ Support Palliat Care 2015 5: A1
doi: 10.1136/bmjspcare-2015-000906.1 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A1.1
These include:
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Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts
Oral and Workshop Abstract Submissions OA1
THERE’S PLENTY OF TALK ABOUT ADVANCE CARE PLANNING BUT SHOULD WOMEN BE LISTENING?
Lisa Williams, Lynne Giddings, Gary Bellamy, Merryn Gott. School of Nursing, University of Auckland, New Zealand 10.1136/bmjspcare-2015-000906.1
Background It is well established that populations worldwide are ageing. It is also well known that women will continue to live longer than men. Indeed, the social gerontology literature describes ‘deep old age’ as being predominantly female. However, little research exists about the gendered implications of palliative care. Aim To provide a feminist critique of attitudes towards and perceptions about Advance Care Planning (ACP) amongst community dwelling adults. Methods Forty-seven women and men (55–93) resident in Auckland, New Zealand and members of community organisations participated in seven focus groups. Vignettes about individuals with chronic illnesses were used to encourage discussion about participants’ views on Advance Care Planning (ACP). A feminist gerontology framework informed the thematic analysis. Results Study participants stated there is an expectation women will provide end of life care for their partners, thus facilitating the partner‘s option to remain at home. Some women voiced concern about how a lack of financial resources, family and social networks affected their current wellbeing and shaped their fears for the future. Other attitudes expressed highlighted awareness of the physical, emotional and financial burden women experience as a result of providing end of life care. Conclusion This study, one of the first to adopt and explicitly feminist approach to ACP, suggests attitudes towards ACP are highly gendered, while women are often caregivers for others at the end of life, their own choices are more likely to be circumscribed by living alone at the end of life or being resident in aged residential care.
OA2
CHINESE MIGRANT PEASANT WORKERS AND THE CONTRADICTORY DEMANDS OF FILIAL PIETY IN NEO-LIBERAL CHINESE SOCIETY: A CASE STUDY OF FILIAL END-OF-LIFE CARE IN LANGZHONG CITY
Longtao He. University of Christchurch, New Zealand 10.1136/bmjspcare-2015-000906.2
Background Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multigenerational households caused by rural-urban migration, population ageing, the fall in fertility and ‘One-Child Policy’, and women’s increasing participation in the labour market, emphasises an individualised, wage earning centred society. On the other hand, the Chinese government has sought to enforce a form of institutionalised filial piety through policies that legally require younger generations fulfil the full responsibility of care as there is no institutionalised equivalent of the welfare state to provide e.g. home help or personal care to the elderly whose relatives live and work at some distance. This places many younger
SPCare 2015;5(Suppl 1):A1–A32
generations in the contradiction of having to comply with neoliberal labour market demands while also fulfilling state enforced filial piety. Aim This research is to look at how Chinese migrant worker experience perceived filial responsibilities in relation to End-ofLife care for parents diagnosed with cancer in the current Chinese context. Method My PhD, based on interviews with migrant peasant workers caught in this dilemma by the demands of having a terminally ill parent, examines how Chinese migrant peasant workers negotiate and conduct their filial practices. Results The preliminary analysis of the interviews suggests that ‘Filial Piety’ is getting reconstructed in multifaceted ways as they negotiate the care dilemmas they face. The way they engage with the concept of filial piety enables and constrains how they can think about and practically organise their parents’ care. Conclusion The result would shed a light on evaluation of and suggestions for governmental policy-makings, such as the newly implemented Parent-Visiting law in China, in terms of better reinforcing familial value and equipping end-of-life care, as well as taking into account of the specificity of peasant migrant workers’ socio-economic status quo.
WA3
ROOM FOR DEATH – INTERNATIONAL MUSEUM – VISITORS’ PREFERENCES REGARDING THE END OF THEIR LIFE
1
Olav Lindqvist, 2Carol Tishelman. 1Deptartment of Learning, Informatics, Management and Ethics/MMC, Karolinska Institutet, Sweden; 2Deptartment of Nursing, Umeå University, Umeå, Sweden
10.1136/bmjspcare-2015-000906.3
Background Just as pain medications aim to relieve physical suffering, supportive surrounding for death and dying may facilitate well-being and comfort. However, little has been written of the experience of or preferences for settings for death and dying. Aim We investigate preferences for and reflections about settings for end-of-life (EoL) in an international sample of museum visitors. Methods Data derive from a project teaming artists and craftspeople together to create prototypes of space for difficult conversations in EoL settings. These prototypes were presented in a museum exhibition, “Room for Death”, in Stockholm in 2012. As project consultants, we contributed a question to the public viewing the exhibition: “How would you like it to be around you when you are dying?” and analysed responses with a phenomenographic approach. Results Five-hundred twelve responses were obtained from visitors from 46 countries. Responses were categorised in the following inductively– derived categories of types of deaths: The “Familiar”, “Larger-than life”, “Lone”, “Mediated” “Calm and peaceful”, “Sensuous”, “‘Green’”, and “Distanced” death. Responses could relate to one category or be composites uniting different categories in individual combinations. Conclusion These data provide insight into different facets of contemporary reflections about death and dying. Despite the selective sample, the findings give reason to consider how underlying assumptions and care provision in established forms for EoL care may differ from people’s preferences. This project can be seen as an example of innovative endeavours to promote public awareness of issues related to death and dying, within the framework of health-promoting palliative care.
A1
Downloaded from http://spcare.bmj.com/ on November 29, 2015 - Published by group.bmj.com
OA1 There's plenty of talk about advance care planning but should women be listening? Lisa Williams, Lynne Giddings, Gary Bellamy and Merryn Gott BMJ Support Palliat Care 2015 5: A1
doi: 10.1136/bmjspcare-2015-000906.1 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A1.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
