Downloaded from http://spcare.bmj.com/ on September 16, 2015 - Published by group.bmj.com
Abstracts suggesting that the number of BAME patients accessing our services did not reflect the real need. Aim To increase access to Hospice Care services for people from BAME communities. Methods From April to July 2007 we used qualitative methods to carry out an exploratory study, to identify barriers to hospice care for patients from BAME communities. Currently we use community development methods to raise awareness of hospice services among BAME communities in Birmingham and Sandwell; while offering training and cultural/spiritual broker services to clinicians increasing their understanding of patients and families from these communities. Results There was no information about Hospice care services among people from BAME communities. Many people from BAME communities belong to cultural or spiritual groups whose members support each other during times of celebration, illness, death and bereavement. They refer to this support as ‘our way of life’. Death, dying, and cancer are taboo subjects. Conclusion In 2009 we set up the Compassionate Communities Project (CCP) within our Reaching People Programme (RPP) to increase access to our services for people from BAME communities. CCP enables community groups and service providers to work together in end of life. Representatives from BAME communities help train clinicians on supporting people from their communities in end of life.
OA18
POPULATION BASED END OF LIFE CARE – MEETING THE CHALLENGE OF THE AGEING POPULATION
Keri Thomas. The Gold Standards Framework, UK 10.1136/bmjspcare-2015-000906.18
Background The key challenge for most developed countries is meeting the needs of our ageing population, in particular, those nearing the end of their lives – population-based end-of-life care. Building on a public health approach to meet needs of an areawide population, and a practical approach of enabling generalist frontline staff care for all people in a variety of settings using the GSF Quality Improvement Programmes, we describe progress in a few GSF Cross-Boundary Care Foundation Sites taking a population-based view to meet the challenges of the ageing population. Aims Taking a whole-system view, we explore ways to ensure all people receive quality care towards the final stages of life in line with their needs and wishes in a way that is cost-effective, responsive and compassionate. Expanding concepts of palliative/ end-of-life care to include care for people with long-term conditions, dementia, and frailty. Methods We describe practical progress in a number of GSF XBC Sites, enabling generalist frontline staff including: . . . .
Identifying and prioritising people earlier Reducing ‘diagnostic apartheid’ Enabling more to live well and die well in the place and manner of their choosing Encouraging integrated person-centred care, reducing inappropriate over-Hospitalisation and prevention of over – medicalising.
Results Use of GSF in various settings to enable generalist frontline staff is described, with key outcome measures and evaluations in the UK, and internationally.
A6
Conclusion As the population ages, population-based end of life care will be one of the most significant developments to meet the challenges for a fit-for-purpose health service of the future.
OA19
CAN ORAL HISTORY IN PALLIATIVE CARE INFLUENCE THE WELL-BEING OF PARTICIPANTS AND THE BEREAVED?
Michelle Winslow, Sam Smith. University of Sheffield, UK 10.1136/bmjspcare-2015-000906.19
Background Oral history is the audio recording of unique life experience. Participants are involved in producing their own life histories, in their own voice, with no medical agenda. Oral history in palliative care began as a service in Sheffield in 2007 with Sheffield Hospitals Charity. In 2012 Macmillan Cancer Support piloted five further services in the North of England and Northern Ireland. Aim To assess the impact of recording an oral history in palliative care and to understand how the recording is received by family in bereavement. Methods The study conducted semi-structured interviews with people associated with oral history in Sheffield. Thirty two interviews were carried out with 10 patients; 9 bereaved family members; 6 health and social care professional; 7 bereavement support volunteers. Results People who had made recordings said that it was an enjoyable experience and that creating a family record was important to them. Bereaved family and friends stressed that having a voice recording was important for them and a comfort to listen to. The process of making the recording brought families together to share memories and find connexions and meanings. Conclusion Oral history interviewees, their family, bereavement volunteers and health professionals were enthusiastic about oral history. The research highlighted that creating a personal voice legacy can be an act of caring by the dying person, to help families subsequently cope with loss. The oral history process is seen as positive for the well-being of individuals in palliative care and bereaved family and friends.
OA20
THE POSITIONING OF FAMILY, FRIENDS, COMMUNITY, AND SERVICE PROVIDERS IN SUPPORT NETWORKS FOR CARING AT END-OF-LIFE: A SOCIAL NETWORK ANALYSIS
Rosemary Leonard, Debbie Horsfall, John Rosenberg, Kerrie Noonan. CSIRO, Australia 10.1136/bmjspcare-2015-000906.20
Background Although there is ample evidence of the risk to carers from the burden of caring, there is also evidence that a caring network can relieve the burden on the principal carer, strengthen community relationships, and increase ‘Death Literacy’ in the community. There is often an assumption that, in caring networks, family and service providers are central and friends and community are marginal. We examined whether this is the case in practice using SNA. Aim To identify the relative positioning of family, friends, community, and service providers in caring networks.
SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on September 16, 2015 - Published by group.bmj.com
OA18 Population based end of life care − meeting the challenge of the ageing population Keri Thomas BMJ Support Palliat Care 2015 5: A6
doi: 10.1136/bmjspcare-2015-000906.18 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A6.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts suggesting that the number of BAME patients accessing our services did not reflect the real need. Aim To increase access to Hospice Care services for people from BAME communities. Methods From April to July 2007 we used qualitative methods to carry out an exploratory study, to identify barriers to hospice care for patients from BAME communities. Currently we use community development methods to raise awareness of hospice services among BAME communities in Birmingham and Sandwell; while offering training and cultural/spiritual broker services to clinicians increasing their understanding of patients and families from these communities. Results There was no information about Hospice care services among people from BAME communities. Many people from BAME communities belong to cultural or spiritual groups whose members support each other during times of celebration, illness, death and bereavement. They refer to this support as ‘our way of life’. Death, dying, and cancer are taboo subjects. Conclusion In 2009 we set up the Compassionate Communities Project (CCP) within our Reaching People Programme (RPP) to increase access to our services for people from BAME communities. CCP enables community groups and service providers to work together in end of life. Representatives from BAME communities help train clinicians on supporting people from their communities in end of life.
OA18
POPULATION BASED END OF LIFE CARE – MEETING THE CHALLENGE OF THE AGEING POPULATION
Keri Thomas. The Gold Standards Framework, UK 10.1136/bmjspcare-2015-000906.18
Background The key challenge for most developed countries is meeting the needs of our ageing population, in particular, those nearing the end of their lives – population-based end-of-life care. Building on a public health approach to meet needs of an areawide population, and a practical approach of enabling generalist frontline staff care for all people in a variety of settings using the GSF Quality Improvement Programmes, we describe progress in a few GSF Cross-Boundary Care Foundation Sites taking a population-based view to meet the challenges of the ageing population. Aims Taking a whole-system view, we explore ways to ensure all people receive quality care towards the final stages of life in line with their needs and wishes in a way that is cost-effective, responsive and compassionate. Expanding concepts of palliative/ end-of-life care to include care for people with long-term conditions, dementia, and frailty. Methods We describe practical progress in a number of GSF XBC Sites, enabling generalist frontline staff including: . . . .
Identifying and prioritising people earlier Reducing ‘diagnostic apartheid’ Enabling more to live well and die well in the place and manner of their choosing Encouraging integrated person-centred care, reducing inappropriate over-Hospitalisation and prevention of over – medicalising.
Results Use of GSF in various settings to enable generalist frontline staff is described, with key outcome measures and evaluations in the UK, and internationally.
A6
Conclusion As the population ages, population-based end of life care will be one of the most significant developments to meet the challenges for a fit-for-purpose health service of the future.
OA19
CAN ORAL HISTORY IN PALLIATIVE CARE INFLUENCE THE WELL-BEING OF PARTICIPANTS AND THE BEREAVED?
Michelle Winslow, Sam Smith. University of Sheffield, UK 10.1136/bmjspcare-2015-000906.19
Background Oral history is the audio recording of unique life experience. Participants are involved in producing their own life histories, in their own voice, with no medical agenda. Oral history in palliative care began as a service in Sheffield in 2007 with Sheffield Hospitals Charity. In 2012 Macmillan Cancer Support piloted five further services in the North of England and Northern Ireland. Aim To assess the impact of recording an oral history in palliative care and to understand how the recording is received by family in bereavement. Methods The study conducted semi-structured interviews with people associated with oral history in Sheffield. Thirty two interviews were carried out with 10 patients; 9 bereaved family members; 6 health and social care professional; 7 bereavement support volunteers. Results People who had made recordings said that it was an enjoyable experience and that creating a family record was important to them. Bereaved family and friends stressed that having a voice recording was important for them and a comfort to listen to. The process of making the recording brought families together to share memories and find connexions and meanings. Conclusion Oral history interviewees, their family, bereavement volunteers and health professionals were enthusiastic about oral history. The research highlighted that creating a personal voice legacy can be an act of caring by the dying person, to help families subsequently cope with loss. The oral history process is seen as positive for the well-being of individuals in palliative care and bereaved family and friends.
OA20
THE POSITIONING OF FAMILY, FRIENDS, COMMUNITY, AND SERVICE PROVIDERS IN SUPPORT NETWORKS FOR CARING AT END-OF-LIFE: A SOCIAL NETWORK ANALYSIS
Rosemary Leonard, Debbie Horsfall, John Rosenberg, Kerrie Noonan. CSIRO, Australia 10.1136/bmjspcare-2015-000906.20
Background Although there is ample evidence of the risk to carers from the burden of caring, there is also evidence that a caring network can relieve the burden on the principal carer, strengthen community relationships, and increase ‘Death Literacy’ in the community. There is often an assumption that, in caring networks, family and service providers are central and friends and community are marginal. We examined whether this is the case in practice using SNA. Aim To identify the relative positioning of family, friends, community, and service providers in caring networks.
SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on September 16, 2015 - Published by group.bmj.com
OA18 Population based end of life care − meeting the challenge of the ageing population Keri Thomas BMJ Support Palliat Care 2015 5: A6
doi: 10.1136/bmjspcare-2015-000906.18 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A6.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
