Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
Abstracts PA21
COMMUNITY PARTICIPATION IN SETTING UP PALLIATIVE CARE CLUBS FOR CHRONICALLY ILL AIDS PATIENTS IN LAGOS
research is needed to understand the nature and impact of creative interventions.
Olanrewaju Onigbogi. Department of Community Health and Primary Care, College of Medicine, Nairobi 10.1136/bmjspcare-2015-000906.81
Background With the introduction of Highly Active Anti-retroviral Therapy, more HIV/AIDS patients live longer in our communities. Aim This study was conducted to assess the willingness of people in Lagos to participate in setting up palliative care clubs for these patients. Methodology Self administered questionnaires were completed by 261 respondents with age ranging from 21–61 years. SPSS version 16 data editor was used to analyse data. Univariate odds ratios and 95% confidence intervals (95% CI) were used to evaluate the correlates of willingness to participate (WTP). Results A total of 62% of the respondents reported that they will be willing to participate in palliative care for the HIV patients. Higher willingness was associated with prior contact with higher education (OR = 1.13, 95% CI: 1.02–1.53), present employment (OR = 1.65, 95% CI: 1.45–1.72) and a potential for financial incentives (OR = 1.59, 95% CI: 1.32–1.77). Decreased WTP was associated with concerns about social stigmatisation (OR = 0.35, 95% CI: 0.13–0.71) and possibility of rejection by the patients (OR = 0.83, 95% CI: 0.56–0.93). Conclusion The high level of WTP indicates that such programmes would be better successful if organisers provide incentives as a part of the take-off of this program.
PA22
THE ARTS OF CONNEXION
Jackie Brooks, Rebecca Maher, Kathy Armour, Lucinda Jarrett. Marie Curie Hospice West Midlands, UK
PA23
Aditya Manna, SK Sarkar, LK Khanra. Narikeldaha Prayas, India 10.1136/bmjspcare-2015-000906.83
Background Due to financial incapability and absence of manpower poor families often fail to carry their advanced cancer patients to the nodal centres. This pilot study will explore whether communication by mobile phone can lessen this burden. Aim To identify and try to solve to the extent possible the main difficulties in giving palliative care to the terminal cancer patients of the area. Method Initially a plan was generated regarding management of an advanced cancer patient in a nodal centre at District Head Quarters. Subsequently every two weeks, a trained social worker attached to the nodal centre will follow up and give necessary advice and emotional support to the patients and their families through their registered mobile phone number. Patient’s family were also encouraged to communicate with the team by phone in case of fresh complaints and urgency. Results Since initiation, cancer patients were contacted by mobile phone every two weeks to enquire about their difficulties. In 76% of the situations, trained social workers could give necessary advice by phone regarding management of their physical symptoms. Moreover patient’s family were really overwhelmed by the emotional support offered by the team over phone. Only 24% of cancer patients had to attend the nodal centre for expert advice from Palliative Care specialists. Conclusion This novel approach helped . .
10.1136/bmjspcare-2015-000906.82
Background There is growing evidence that creative arts interventions improve perceived physical and mental. However, there is little research into arts interventions in relation to palliative care and the published studies in arts and health have focussed on visual arts with little attention to dance. Aim A one year clinical audit was followed by a ten week pilot research study explored whether creative movement enabled people to feel more connected to themselves and each other, whether it supported the development of their collective voice and their ability to advocate for themselves and their peers. The service was offered on a group basis in Day Therapy and on a one-to-one basis for patients in the in patient unit. Method Dance sessions were run weekly and evaluated at each session on a simple scale measuring connectedness to oneself and each other in the group, and the joy derived from attendance. Results Healthcare professionals reported that the sessions offered patients a chance to reconnect with the memories of their physicality, whilst also offering an experience that proferred joy, the opportunity to participate in a social group and focussed on sharing support. A patient’s daughter who co-participated in a session reported “Two days before {my mother} died we had a movement session together; we have never felt so together as we did after that session”. Conclusion Whilst palliative care has long recognised the arts, there are benefits to be gained from collaborating and further A26
ALTERNATIVE METHOD TO PROVIDING PALLIATIVE CARE WHERE THERE ARE CAREGIVER SHORTAGES
.
In providing regular physical and emotional support to the patients and their families. In significantly reducing the financial and manpower problems of carrying patients to the nodal units. In improved quality of life of patients by continuous guidance. More and more team members can take help of this new strategy for better communication and uninterrupted care.
PA24
A GROUNDED THEORY ANALYSIS TO EXPLORE THE IMPACT OF GROUP WORK AS A METHOD OF SERVICE DELIVERY BY COMMUNITY MATRONS TO SUPPORT THOSE LIVING WITH MULTIPLE LONG-TERM CONDITIONS
Abigail Barkham. Southern Health NHS Foundation Trust, UK 10.1136/bmjspcare-2015-000906.84
Background The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high service users who had multiple longterm conditions (LTCs). Little evidence exists as to how the role should be delivered to enhance disease self-management and levels of self-efficacy for the service users. Aim Reviewing the role of Community Matrons in regard to their work with patients with multiple long-term conditions.
SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
PA23 Alternative method to providing palliative care where there are caregiver shortages Aditya Manna, SK Sarkar and LK Khanra BMJ Support Palliat Care 2015 5: A26
doi: 10.1136/bmjspcare-2015-000906.83 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A26.2
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts PA21
COMMUNITY PARTICIPATION IN SETTING UP PALLIATIVE CARE CLUBS FOR CHRONICALLY ILL AIDS PATIENTS IN LAGOS
research is needed to understand the nature and impact of creative interventions.
Olanrewaju Onigbogi. Department of Community Health and Primary Care, College of Medicine, Nairobi 10.1136/bmjspcare-2015-000906.81
Background With the introduction of Highly Active Anti-retroviral Therapy, more HIV/AIDS patients live longer in our communities. Aim This study was conducted to assess the willingness of people in Lagos to participate in setting up palliative care clubs for these patients. Methodology Self administered questionnaires were completed by 261 respondents with age ranging from 21–61 years. SPSS version 16 data editor was used to analyse data. Univariate odds ratios and 95% confidence intervals (95% CI) were used to evaluate the correlates of willingness to participate (WTP). Results A total of 62% of the respondents reported that they will be willing to participate in palliative care for the HIV patients. Higher willingness was associated with prior contact with higher education (OR = 1.13, 95% CI: 1.02–1.53), present employment (OR = 1.65, 95% CI: 1.45–1.72) and a potential for financial incentives (OR = 1.59, 95% CI: 1.32–1.77). Decreased WTP was associated with concerns about social stigmatisation (OR = 0.35, 95% CI: 0.13–0.71) and possibility of rejection by the patients (OR = 0.83, 95% CI: 0.56–0.93). Conclusion The high level of WTP indicates that such programmes would be better successful if organisers provide incentives as a part of the take-off of this program.
PA22
THE ARTS OF CONNEXION
Jackie Brooks, Rebecca Maher, Kathy Armour, Lucinda Jarrett. Marie Curie Hospice West Midlands, UK
PA23
Aditya Manna, SK Sarkar, LK Khanra. Narikeldaha Prayas, India 10.1136/bmjspcare-2015-000906.83
Background Due to financial incapability and absence of manpower poor families often fail to carry their advanced cancer patients to the nodal centres. This pilot study will explore whether communication by mobile phone can lessen this burden. Aim To identify and try to solve to the extent possible the main difficulties in giving palliative care to the terminal cancer patients of the area. Method Initially a plan was generated regarding management of an advanced cancer patient in a nodal centre at District Head Quarters. Subsequently every two weeks, a trained social worker attached to the nodal centre will follow up and give necessary advice and emotional support to the patients and their families through their registered mobile phone number. Patient’s family were also encouraged to communicate with the team by phone in case of fresh complaints and urgency. Results Since initiation, cancer patients were contacted by mobile phone every two weeks to enquire about their difficulties. In 76% of the situations, trained social workers could give necessary advice by phone regarding management of their physical symptoms. Moreover patient’s family were really overwhelmed by the emotional support offered by the team over phone. Only 24% of cancer patients had to attend the nodal centre for expert advice from Palliative Care specialists. Conclusion This novel approach helped . .
10.1136/bmjspcare-2015-000906.82
Background There is growing evidence that creative arts interventions improve perceived physical and mental. However, there is little research into arts interventions in relation to palliative care and the published studies in arts and health have focussed on visual arts with little attention to dance. Aim A one year clinical audit was followed by a ten week pilot research study explored whether creative movement enabled people to feel more connected to themselves and each other, whether it supported the development of their collective voice and their ability to advocate for themselves and their peers. The service was offered on a group basis in Day Therapy and on a one-to-one basis for patients in the in patient unit. Method Dance sessions were run weekly and evaluated at each session on a simple scale measuring connectedness to oneself and each other in the group, and the joy derived from attendance. Results Healthcare professionals reported that the sessions offered patients a chance to reconnect with the memories of their physicality, whilst also offering an experience that proferred joy, the opportunity to participate in a social group and focussed on sharing support. A patient’s daughter who co-participated in a session reported “Two days before {my mother} died we had a movement session together; we have never felt so together as we did after that session”. Conclusion Whilst palliative care has long recognised the arts, there are benefits to be gained from collaborating and further A26
ALTERNATIVE METHOD TO PROVIDING PALLIATIVE CARE WHERE THERE ARE CAREGIVER SHORTAGES
.
In providing regular physical and emotional support to the patients and their families. In significantly reducing the financial and manpower problems of carrying patients to the nodal units. In improved quality of life of patients by continuous guidance. More and more team members can take help of this new strategy for better communication and uninterrupted care.
PA24
A GROUNDED THEORY ANALYSIS TO EXPLORE THE IMPACT OF GROUP WORK AS A METHOD OF SERVICE DELIVERY BY COMMUNITY MATRONS TO SUPPORT THOSE LIVING WITH MULTIPLE LONG-TERM CONDITIONS
Abigail Barkham. Southern Health NHS Foundation Trust, UK 10.1136/bmjspcare-2015-000906.84
Background The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high service users who had multiple longterm conditions (LTCs). Little evidence exists as to how the role should be delivered to enhance disease self-management and levels of self-efficacy for the service users. Aim Reviewing the role of Community Matrons in regard to their work with patients with multiple long-term conditions.
SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on November 15, 2015 - Published by group.bmj.com
PA23 Alternative method to providing palliative care where there are caregiver shortages Aditya Manna, SK Sarkar and LK Khanra BMJ Support Palliat Care 2015 5: A26
doi: 10.1136/bmjspcare-2015-000906.83 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A26.2
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
