Research and applications
Attitudes regarding privacy of genomic information in personalized cancer therapy Deevakar Rogith,1 Rafeek A Yusuf,1 Shelley R Hovick,2,3 Susan K Peterson,2 Allison M Burton-Chase,2,4 Yisheng Li,2 Funda Meric-Bernstam,2 Elmer V Bernstam1,5 ▸ Additional material is published online only. To view please visit the journal online (http://dx.doi.org/10.1136/ amiajnl-2013-002579). 1
The University of Texas School of Biomedical Informatics, Houston, Texas, USA 2 The University of Texas MD Anderson Cancer Center, Houston, Texas, USA 3 The Ohio State University, Columbus, Ohio, USA 4 Albany College of Pharmacy and Health Sciences, Albany, New York, USA 5 Division of General Internal Medicine, Department of Internal Medicine, The University of Texas Health Science Center at Houston, Houston, Texas, USA Correspondence to Dr Elmer V Bernstam, Division of General Internal Medicine, Department of Internal Medicine, The University of Texas Health Science Center at Houston, 7000 Fannin Street, Suite 600, Houston, TX 77030, USA; [email protected] Received 17 December 2013 Revised 24 March 2014 Accepted 29 March 2014 Published Online First 15 April 2014
ABSTRACT Objective To evaluate attitudes regarding privacy of genomic data in a sample of patients with breast cancer. Methods Female patients with breast cancer (n=100) completed a questionnaire assessing attitudes regarding concerns about privacy of genomic data. Results Most patients (83%) indicated that genomic data should be protected. However, only 13% had significant concerns regarding privacy of such data. Patients expressed more concern about insurance discrimination than employment discrimination (43% vs 28%, p
Attitudes regarding privacy of genomic information in personalized cancer therapy Deevakar Rogith,1 Rafeek A Yusuf,1 Shelley R Hovick,2,3 Susan K Peterson,2 Allison M Burton-Chase,2,4 Yisheng Li,2 Funda Meric-Bernstam,2 Elmer V Bernstam1,5 ▸ Additional material is published online only. To view please visit the journal online (http://dx.doi.org/10.1136/ amiajnl-2013-002579). 1
The University of Texas School of Biomedical Informatics, Houston, Texas, USA 2 The University of Texas MD Anderson Cancer Center, Houston, Texas, USA 3 The Ohio State University, Columbus, Ohio, USA 4 Albany College of Pharmacy and Health Sciences, Albany, New York, USA 5 Division of General Internal Medicine, Department of Internal Medicine, The University of Texas Health Science Center at Houston, Houston, Texas, USA Correspondence to Dr Elmer V Bernstam, Division of General Internal Medicine, Department of Internal Medicine, The University of Texas Health Science Center at Houston, 7000 Fannin Street, Suite 600, Houston, TX 77030, USA; [email protected] Received 17 December 2013 Revised 24 March 2014 Accepted 29 March 2014 Published Online First 15 April 2014
ABSTRACT Objective To evaluate attitudes regarding privacy of genomic data in a sample of patients with breast cancer. Methods Female patients with breast cancer (n=100) completed a questionnaire assessing attitudes regarding concerns about privacy of genomic data. Results Most patients (83%) indicated that genomic data should be protected. However, only 13% had significant concerns regarding privacy of such data. Patients expressed more concern about insurance discrimination than employment discrimination (43% vs 28%, p
