Consultant Editor Bridget Johnston Editor Craig Nicholson Commercial Executive Barry Maguire Editorial Manager Aysha Mendes Associate Publisher, Medical Education Tracy Cowan Associate Publisher Julie Smith Publisher Anthony Kerr Production Manager Jon Redmayne Circulation Director Sally Boettcher Managing Director Jon Benson Chief Executive Officer Ben Allen Editorial enquiries: [email protected] Sales enquiries: [email protected]
Editorial Board AUSTRALIA Donna Drew Clinical Nurse Consultant, Paediatric Oncology/Palliative Care, Kids Cancer Centre, Sydney Children’s Hospital
Bridget Johnston Professor of Palliative and Supportive Care, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, University of Nottingham
Jane Phillips Professor Palliative Nursing, The Cunningham Centre for Palliative Care Sydney, Sacred Heart Hospice, and The University of Notre Dame Australia
Daniel Kelly RCN Chair of Nursing Research, School of Healthcare Sciences, Cardiff University
BELARUS Anna Garcakova Director of the Belarusian Children’s Hospice BELGIUM Tine De Vlieger General Coordinator, Palliatieve Hulpverlening Antwerpen, University of Antwerp EIRE Philip Larkin Professor of Clinical Nursing (Palliative Care), School of Nursing, Midwifery and Health Systems and Our Lady’s Hospice Ltd, Health Sciences Centre, University College Dublin, Ireland Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice, Dublin 18 HONG KONG Cecilia Chan Professor and Director, Centre of Behavioural Health, Pokfulam NORTHERN IRELAND Sonja McIlfatrick Reader, Institute of Nursing Research, University of Ulster; Head of Research, All Ireland Institute of Hospice & Palliative Care UGANDA Julia Downing Honorary Professor in Palliative Care, Makerere University, Kampala UNITED KINGDOM John Costello Senior Lecturer, University of Manchester
Diane Laverty Nurse Consultant in Palliative Care, St Joseph’s Hospice, London Carole Mula Macmillan Nurse Consultant in Palliative Care and Professional Lead Nurse for Division of Clinical Support Services, The Christe NHS Foundation Trust, Manchester Brian Nyatanga Senior Lecturer, University of Worcester Julie Skilbeck Senior Lecturer, Sheffield Hallam University Dion Smyth Lecturer-practitioner in Cancer and Palliative Care, Birmingham City University Anna-Marie Stevens Macmillan Nurse Consultant Cancer Palliative Care, The Royal Marsden NHS Foundation Trust, London UNITED STATES Jennifer Baird Doctoral Candidate, Department of Family Health Care Nursing, National Institute of Nursing Research NRSA Fellow, University of California, San Francisco Patricia Berry Associate Professor and Associate Director, University of Utah Hartford Center of Geriatric Nursing Excellence, University of Utah College of Nursing
UK Personal subscription rates Quarterly Direct Debit Annual Direct Debit Annual Credit Card 2yr Annual Credit Card 3yr Annual Credit Card
£44 £174 £183 £312 £440
Subscribe online: www.magsubscriptions.com, Subscribe by phone: +44 (0) 1722 716997
© © 2014 2013 MA MA Healthcare Healthcare Ltd Ltd
The International Journal of Palliative Nursing is published by MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London SE24 0PB Tel: +44 (0)20 7738 5454 Websites: www.ijpn.co.uk
MA Healthcare Ltd is part of the Mark Allen Group
www.markallengroup.com
International Journal of Palliative Nursing is indexed on Medline, CINAHL, and the British Nursing Index © MA Healthcare Ltd, 2014. All rights reserved. No part of the International Journal of Palliative Nursing may be reproduced, stored in a retrieval system, or transmitted in any form or by any means electronic, mechanical, photocopying, recording, or otherwise without prior written permission of the Publishing Director. ISSN 1357-6321 Printed by Pensord Press Ltd, Blackwood, Gwent NP12 2YA The paper used within this publication has been sourced from Chain-of-Custody certified manufacturers, operating within international environmental standards, to ensure sustainable sourcing of the raw materials, sustainable production and to minimise our carbon footprint.
International Journal of Palliative Nursing 2014, Vol 20, No 6
Editorial
A momentous day for palliative care
F
riday 23 May 2014 was a momentous day for palliative care. On that day the World Health Assembly (WHA) signed a resolution on palliative care, which was appearing on the WHA’s agenda for the first time in its history. In a statement made at the WHA in response to the resolution on behalf of the Worldwide Palliative Care Alliance (WPCA), the International Association for Hospice & Palliative Care (IAHPC), the International Children’s Palliative Care Network (ICPCN), and palliative care associations worldwide, all member states were urged to ‘implement the recommendations in the resolution’ and ‘tear down barriers to palliative care and put an end to unnecessary suffering’ (WPCA, 2014). The resolution, developed under Panama’s leadership, is all-encompassing. It sets out the definition of palliative care and the immense need across the world; recognises that palliative care is fundamental to improving quality of life and is a human right; affirms the need for access to essential medicines, including opioids; acknowledges that palliative care is an ethical responsibility of both health systems and health professionals; recognises the need for palliative care across ages, disease groups, and models of care; and welcomes the inclusion of palliative care into the definition of universal health coverage along with the need for integrated palliative care. It urges member states to ‘develop, strengthen and implement, where appropriate, palliative care policies to support the comprehensive strengthening of health systems to integrate evidence-based, cost-effective and equitable palliative care services in the continuum of care, across all levels, with emphasis on primary care, community and home-based care, and universal coverage schemes’ (WHA, 2014:3). Never before has there been such global recognition of the need for palliative care and a commitment to providing it. It is truly a historical event. Yet what happens next is crucial: when the Executive Board reports back to the 69th WHA in 2016 on progress in the implementation of this resolution, it is vital that significant progress has been made and that lessons learnt in implementing the resolution and developing palliative care are shared. At the international level, work on how we can support the implementation of the resolution is ongoing; however, it is essential that all of us, regardless of where we are working or what role we have in palliative care, consider what part we can play in that implementation. In this issue of the International Journal of Palliative Nursing there are papers on the challenges of providing palliative care to those with intellectual disabilities, the professional autonomy and attitudes of nurses in Iran, psychosocial issues such as death awareness and uncertainty, nursing students’ understanding of palliative care, and euthanasia in children. All these are important topics from which lessons can be learnt for the implementation of the resolution. Thus as we read the literature and go about our day-to-day work in palliative care, we need to be thinking about how what we have learnt can be applied in different settings and how we can each contribute to the ‘integration of palliative care’ into health systems around the word, so that we can indeed ‘tear down barriers to palliative care and put an end to JPN unnecessary suffering’ (WHA, 2014). Il
Julia Downing Honorary Professor, Makerere University, Kampala, Uganda, and International Children’s Palliative Care Network World Health Assembly (2014) Strengthening of palliative care as a component of integrated treatment within the continuum of care. 134th session. EB134.R7. http://bit.ly/1xCeCq0 (accessed 10 June 2014) Worldwide Palliative Care Alliance (2014) 15.5 The Worldwide Palliative Care Alliance. https://apps. who.int/ngostatements/content/155-worldwide-palliative-care-alliance (accessed 10 June 2014)
263
ional Journal of Palliative Nursing. Downloaded from magonlinelibrary.com by 138.253.100.121 on December 5, 2015. For personal use only. No other uses without permission. . All rights re
Editorial Board AUSTRALIA Donna Drew Clinical Nurse Consultant, Paediatric Oncology/Palliative Care, Kids Cancer Centre, Sydney Children’s Hospital
Bridget Johnston Professor of Palliative and Supportive Care, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, University of Nottingham
Jane Phillips Professor Palliative Nursing, The Cunningham Centre for Palliative Care Sydney, Sacred Heart Hospice, and The University of Notre Dame Australia
Daniel Kelly RCN Chair of Nursing Research, School of Healthcare Sciences, Cardiff University
BELARUS Anna Garcakova Director of the Belarusian Children’s Hospice BELGIUM Tine De Vlieger General Coordinator, Palliatieve Hulpverlening Antwerpen, University of Antwerp EIRE Philip Larkin Professor of Clinical Nursing (Palliative Care), School of Nursing, Midwifery and Health Systems and Our Lady’s Hospice Ltd, Health Sciences Centre, University College Dublin, Ireland Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice, Dublin 18 HONG KONG Cecilia Chan Professor and Director, Centre of Behavioural Health, Pokfulam NORTHERN IRELAND Sonja McIlfatrick Reader, Institute of Nursing Research, University of Ulster; Head of Research, All Ireland Institute of Hospice & Palliative Care UGANDA Julia Downing Honorary Professor in Palliative Care, Makerere University, Kampala UNITED KINGDOM John Costello Senior Lecturer, University of Manchester
Diane Laverty Nurse Consultant in Palliative Care, St Joseph’s Hospice, London Carole Mula Macmillan Nurse Consultant in Palliative Care and Professional Lead Nurse for Division of Clinical Support Services, The Christe NHS Foundation Trust, Manchester Brian Nyatanga Senior Lecturer, University of Worcester Julie Skilbeck Senior Lecturer, Sheffield Hallam University Dion Smyth Lecturer-practitioner in Cancer and Palliative Care, Birmingham City University Anna-Marie Stevens Macmillan Nurse Consultant Cancer Palliative Care, The Royal Marsden NHS Foundation Trust, London UNITED STATES Jennifer Baird Doctoral Candidate, Department of Family Health Care Nursing, National Institute of Nursing Research NRSA Fellow, University of California, San Francisco Patricia Berry Associate Professor and Associate Director, University of Utah Hartford Center of Geriatric Nursing Excellence, University of Utah College of Nursing
UK Personal subscription rates Quarterly Direct Debit Annual Direct Debit Annual Credit Card 2yr Annual Credit Card 3yr Annual Credit Card
£44 £174 £183 £312 £440
Subscribe online: www.magsubscriptions.com, Subscribe by phone: +44 (0) 1722 716997
© © 2014 2013 MA MA Healthcare Healthcare Ltd Ltd
The International Journal of Palliative Nursing is published by MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London SE24 0PB Tel: +44 (0)20 7738 5454 Websites: www.ijpn.co.uk
MA Healthcare Ltd is part of the Mark Allen Group
www.markallengroup.com
International Journal of Palliative Nursing is indexed on Medline, CINAHL, and the British Nursing Index © MA Healthcare Ltd, 2014. All rights reserved. No part of the International Journal of Palliative Nursing may be reproduced, stored in a retrieval system, or transmitted in any form or by any means electronic, mechanical, photocopying, recording, or otherwise without prior written permission of the Publishing Director. ISSN 1357-6321 Printed by Pensord Press Ltd, Blackwood, Gwent NP12 2YA The paper used within this publication has been sourced from Chain-of-Custody certified manufacturers, operating within international environmental standards, to ensure sustainable sourcing of the raw materials, sustainable production and to minimise our carbon footprint.
International Journal of Palliative Nursing 2014, Vol 20, No 6
Editorial
A momentous day for palliative care
F
riday 23 May 2014 was a momentous day for palliative care. On that day the World Health Assembly (WHA) signed a resolution on palliative care, which was appearing on the WHA’s agenda for the first time in its history. In a statement made at the WHA in response to the resolution on behalf of the Worldwide Palliative Care Alliance (WPCA), the International Association for Hospice & Palliative Care (IAHPC), the International Children’s Palliative Care Network (ICPCN), and palliative care associations worldwide, all member states were urged to ‘implement the recommendations in the resolution’ and ‘tear down barriers to palliative care and put an end to unnecessary suffering’ (WPCA, 2014). The resolution, developed under Panama’s leadership, is all-encompassing. It sets out the definition of palliative care and the immense need across the world; recognises that palliative care is fundamental to improving quality of life and is a human right; affirms the need for access to essential medicines, including opioids; acknowledges that palliative care is an ethical responsibility of both health systems and health professionals; recognises the need for palliative care across ages, disease groups, and models of care; and welcomes the inclusion of palliative care into the definition of universal health coverage along with the need for integrated palliative care. It urges member states to ‘develop, strengthen and implement, where appropriate, palliative care policies to support the comprehensive strengthening of health systems to integrate evidence-based, cost-effective and equitable palliative care services in the continuum of care, across all levels, with emphasis on primary care, community and home-based care, and universal coverage schemes’ (WHA, 2014:3). Never before has there been such global recognition of the need for palliative care and a commitment to providing it. It is truly a historical event. Yet what happens next is crucial: when the Executive Board reports back to the 69th WHA in 2016 on progress in the implementation of this resolution, it is vital that significant progress has been made and that lessons learnt in implementing the resolution and developing palliative care are shared. At the international level, work on how we can support the implementation of the resolution is ongoing; however, it is essential that all of us, regardless of where we are working or what role we have in palliative care, consider what part we can play in that implementation. In this issue of the International Journal of Palliative Nursing there are papers on the challenges of providing palliative care to those with intellectual disabilities, the professional autonomy and attitudes of nurses in Iran, psychosocial issues such as death awareness and uncertainty, nursing students’ understanding of palliative care, and euthanasia in children. All these are important topics from which lessons can be learnt for the implementation of the resolution. Thus as we read the literature and go about our day-to-day work in palliative care, we need to be thinking about how what we have learnt can be applied in different settings and how we can each contribute to the ‘integration of palliative care’ into health systems around the word, so that we can indeed ‘tear down barriers to palliative care and put an end to JPN unnecessary suffering’ (WHA, 2014). Il
Julia Downing Honorary Professor, Makerere University, Kampala, Uganda, and International Children’s Palliative Care Network World Health Assembly (2014) Strengthening of palliative care as a component of integrated treatment within the continuum of care. 134th session. EB134.R7. http://bit.ly/1xCeCq0 (accessed 10 June 2014) Worldwide Palliative Care Alliance (2014) 15.5 The Worldwide Palliative Care Alliance. https://apps. who.int/ngostatements/content/155-worldwide-palliative-care-alliance (accessed 10 June 2014)
263
ional Journal of Palliative Nursing. Downloaded from magonlinelibrary.com by 138.253.100.121 on December 5, 2015. For personal use only. No other uses without permission. . All rights re
